Tag Archives | overload

The complications of having delayed sensory overload problems

By on January 31, 2012 in Autism

I have a bit of a booming voice, it can get loud… so when my dog is particularly bad or my boys stop listening and I raise my voice… it gets attention. I’m not yelling or screaming out of control by any means, it’s just… raising my voice is… loud.

The problem with this is that my son Cameron is especially affected… since a sudden loud voice like that can send him running to hide under some blankets.

At least when that happens though, it’s instant. I’m done, he’s done… we go about our day. No worries.

The real issues come into play when it’s not done and over in an instant.

A positive is a negative

Cameron shows some pretty amazing resilience sometimes when it comes to being able to handle himself. Yesterday was a perfect example of this.

My boys were invited to a birthday party at an indoor playground where kids were free to just go anywhere and do anything. There were games all around, flashing lights and a huge network of netting and tubes to climb and go through.

A child’s paradise!

house of wee

Cameron is in green

When we arrived the place was full which meant the entire place was just a wall of noise. An occasional crying child somewhere in the distance, lots of screaming and a bit of laughing mixed in.

Cameron and his little brother jumped right in and played just as any child should… it was quite nice to see. They had a lot of fun.

But I knew, I just knew that this was going to be too much. It was too much for me and I wasn’t right in the middle of it.

See, Cameron won’t just have a meltdown right in the middle of the place… instead, he’ll store all that pent up energy until he’s back home where he feels safe.

So, even though he can have a great time and handle himself quite well for quite some time… it comes with a price.

Solving the mystery

At first, this presented quite the challenge for us as parents as we’d have to figure out why our little guy was completely out of control for a day or two. To us, it would seem completely random that he’d just be really moody, extremely hyper and very much unwilling to listen to us or do the things we asked of him.

But it wasn’t random. It was actually very much a cause and effect situation (which most things are), where the effect was hyperactivity, irritability and lack of control… and the cause was over stimulation that no one had noticed.

What would happen is that my son would go to school and they’d have an assembly, or go on a field trip, or a party like the one I just described… something somewhere would happen and even though my son had a wonderful time and everyone thought he was just the most perfect little boy… there was actually a time bomb building up pressure, waiting to get home.

The biggest thing is, it’s entirely up to us as parents to solve that sort of thing too because no one else will ever see it. They only see the boy that holds it all together during the day.

Over time, I’ve come to recognize the clues though. For example, at that birthday party, when it came time for everyone to sit and have cake, all of the kids were excited.. but only Cameron bounced in his seat. Literally.

He had so much pent up energy in him, beyond what the other kids had, that he quite literally could not keep his butt on his seat. And while he was still quite happy and having fun, I knew that if he can’t keep his butt on his seat even after I ask him too, that it’s a sensory problem that’s been building up.

Something he just has to do for himself

This is one of those cases where, we as parents, could decide to just not go to those places so that we don’t have to deal with the after effects but that’s not very fair to him. He loves going to those places and doing those things.

We could read every book we have and talk to every professional we can find and try to set up systems and procedures to deal with the after effects at home in a constructive way.

But ultimately, this is something that he has to learn to deal with. I can help to guide him as best I can, help to calm him, focus his energies somewhere… but this is something that is likely to stay with him for the rest of his life.. unlike me.

And to be honest, I think he’s starting to get it. When he gets home, he’s still moody and hyper but he’s learning to take time for himself to go off and make believe something on his own. His little brother gets mad sometimes that he can’t go be with his brother but it’s obvious that it has to be that way.

When he’s given his space and allowed to get that energy out through pretending his favorite video games, pokemon or bey blade battles… what ever it is he needs to envision… it works for him. At least usually.

It’s great that he’s able to do that. And it’s even greater that he’s able to put it all aside in the moment and be “just one of the kids” when there is fun to be had.

It’s been hard for us to figure out and to deal with… I’m sure it’s been even harder for him… and we’ll always get people asking questions about it as it’s not quite ‘normal’… even by autism standards… but it is what it is and it works for us.

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People Need to Realize that Autism Is Not Less, It’s More

By on June 18, 2010 in Autism

I think that something that is lost in the translation to people who do not deal with Autism, is that yes, Autistic people have less communication skills, less social skills, less ability to understand non-literal speech and on and on…. but that does not mean that there is less to the person. In fact, it could be argued that there is so much more!

What most people fail to realize is that a person with Autism does not miss details, they get it all. All the sights, sounds, smells.. everything. When you walk into a grocery store, your mind filters out the white noise… the buzzing, humming, mumbling, background music, stuff being moved around, people walking, doors opening and closing… on and on. An Autistic person can’t. And that’s just sound.  Next you take the harsh lighting, things moving everywhere, glints of light off things, flashing lights, labels on everything, colours everywhere, people constantly doing something with something… there’s a lot to see. We say excuse me to the person in front of us and look for items on our list or that’s on sale. And Autistic person can’t do that.
And then there’s the smells… I’ll spare you the gory details on that one.

Now, on top of the sensory issues, you also have to take in the fact that the computers in their heads are working a mile a minute as they process every conversation, work out the math on all the numbers in the place, study the geometry of the fruit… all of this is happening faster than any science fiction computer you’ve ever seen.

What happens is, and is to be expected, a mental break down where even the best and brightest on the planet would agree that it’s simply too much to bare. We’ve all heard of that fun little torture technique where you poke someone in the forehead long enough it drives them crazy, or there’s a high pitched sound you can’t get out of your head?  That’s one… one thing that happens for a matter of minutes… and it drives you crazy. Now imagine a thousand things… for an hour… for a day… forever??

If you are not touched by Autism, then it’s hard to understand… even harder still to understand why we parents and friends are so vocal and fight so hard for our loved ones… and why we hate you oh so ever much more than you hate us while you stare at us because our child screams in line at the cashier.

And if you are touched by Autism, your child, relative, friend… always try to remember that if it seems like they’re behaving irrationally, there’s likely a very good reason for it. Have more patience than you thought you could as you take a deep breath, slow things down a bit and have a look and listen around. You may find that they’re dealing with a lot more than you ever thought someone should have to.

It’s not their fault… it does not make them less… it makes them different.

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