How Did You Know Your Child Was Autistic?

We get this question a lot, which is wonderful. It means that people are interested in knowing what to look for and ultimately, that’s what ‘awareness’ is all about. I’ve said it before and I’ll say it a million times, the only person who can diagnose your child is you. It’s up to you to recognize the signs and then and only then will your child have a chance at getting an official diagnosis and then the help that they need.

Autism signs are tricky because on the surface, they seem like childhood quirks… funny little things that some children do. However, if you add up all the signs… you may come to realize that they’re not quirks at all… especially if they persist longer than just a typical ‘phase’ should.

Since all children tend to exhibit different signs, or sets of signs, you can’t really go by my list as an exact set of signs to look for but it should give you a pretty good idea.

First was something we thought was natural, and I guess it still is. But now we realize he liked it a little too much, and that is swaddling. The idea is that the child feels held and confined as they did in the womb. That it comforts them and keeps them warm. Many babies love it, some do not. It doesn’t hurt them, or have any ill effects. However, in our case, Cameron seemed to like it a little too much and for too long. We, of course, never questioned it. It wasn’t even considered a sign… but looking back, I think it truly was our first sign… and it came at a very early age.

From the moment Cameron was able to sit up on his own, we’d catch him moving his toys from one side of his body, to the other and back again. This would happen for hours. Rather than play with a car, or flip things or examine them… he would simply move them from his left, to his right, one at a time. If he had 5 cars, he’d move them individually to his left side… then once all 5 were there, he’d move them individually to his right.

Eventually this turned to blocks where he’d position himself into a pile of blocks and then move them all to one side of his body. Then, individually, he’d move them all to the other side yet again. For a while, he’d even separate the blocks by colour! He’d end up with 3 or 4 piles of blocks all around him, separated by colour! We thought he was a child prodigy, doing this before he was 1.

After a while, he singled out the purple blocks as his favourite. He would actually dig through a pile of blocks in search of the rare purple ones. We just assumed that purple was his favourite colour.

Soon he moved on to cars where he’d pass them in front of his face, doing his ‘Practising Thai Chi‘ moves. If the car was big enough, he’d much rather flip it over onto it’s back and sit for hours spinning the tires, or even spinning the entire car around. Friends bought him big Tonka trucks, he found the wheels the most exciting, spinning them for hours. We got him a wagon, he’d flip it over and spin the wheels.

For the first 8 months, people thought we had the best baby ever. He never made a sound, never cried. In fact, we had to keep our baby monitors at full volume because when he woke up, he didn’t make a peep. No crying, no nothing. He even made a rather huge mess in his diaper one time and no complaining. He could be hungry, tired, waking up… it made no difference. As a newborn, he’d wake up every 3 hours for feedings in the middle of the night. Think he cried? No, I had to listen for small foot and hand movements.

This brings us to his first birthday where we were really hoping we could get him to dig into a chocolate cake and make a huge mess and get some great pictures. The problem? Cameron hated to be dirty! He didn’t really want to touch it and didn’t like having his hands covered in anything. So we put his hands into the cake for the sake of the pictures and he didn’t get upset but he sure wasn’t happy. We had no idea why.

After, we were hoping for his first word to come at any time but we waited and waited…. and waited. He was finding alternate ways of communicating instead, such as bringing us his cup, pointing at what he wanted and ‘humming’ to indicate he was hungry. It was a very distinct kind of hum, which many family members found funny and often imitated.

For a while, in between 1 and 2, we would find Cameron lining up all his toy cars or trains into a perfect circle around the living room, or making perfectly straight lines. I mean, not exactly perfect but way better than a 1 year old should be doing. He didn’t even know his shapes yet but he was doing this with some crazy precision. He would even go back to adjust some toys to make sure they lined up just right. Again, we were so impressed and thought he was brilliant.

As Cameron‘s second birthday approached, he became more and more secluded, shying away from hugs and kisses. He was also less willing to play with friends or even with us… being quite happy with just doing things on his own off in a corner somewhere.

From the day Cameron was off of baby food, he was a vegetarian… not by our choice, but his. He absolutely refused to eat any meat, even before having tried a bite. The same is true for fast food. He has yet to try a french fry or pizza. He simply knew, even at that young of an age, that he did not want anything to do with any of it. His diet has always been extremely limited by his own choice and no amount of forcing can make him eat the things he doesn’t want to eat. Eventually he even stopped drinking milk on his own, but he loves soya milk… especially the chocolate.

It turns out that even at the age of 1, he knew that the GFCF Diet was what was best for him. Some say that those proteins can act like a drug in Autistic children, much like heroin acts in adults. So at some point, he decided he didn’t like that feeling and just stopped eating the things that gave him those feelings. Even to this day, some ‘scientists’ are saying that the diet really doesn’t help and in some cases, it’s true. But it made a huge difference for us once we cut out bread and other wheat products from his diet. He knew before we did. Read the comments, you’ll see that parents don’t agree with every ‘study’ that comes out.

Finally, the biggest of them all is repetition and routine.  All of these things can be viewed as just quirks that kids have but these things lasted months, years…. still happening! And routine is huge as well, because all children need routine but Autistic children especially. The best example I can give is when we had to change our clocks for daylight savings time and Cameron‘s bed time was an hour later. He wanted to go to bed at exactly the time he knew it was bed time and not a minute later, much less an hour. He was 1, he couldn’t tell time. But he was so set in his routine that when we said no… it’s not bed time yet, he literally hit the floor in the middle of the living room and through a tantrum. He was so upset that we were breaking his routine.

It’s a lot to take in, there are a ton of signs. Chances are, if your child is Autistic, you may recognize some of these, all of these and maybe even some signs that I haven’t mentioned.

Recognizing Autism is not easy…. it’s particularly not easy if it’s not your child and this is why I say, only you (as the parent) can make that first diagnosis.  You’d be very lucky if someone else recognizes it before you… either that, or you weren’t looking for it.

The sooner you can get that diagnosis and start getting the help you need, the better the life your child will have later. So do not put it off, do not dismiss signs. Who knows, maybe they are just quirks in your child, but if not, you owe it to them and to yourself to be sure.

I can’t emphasize it enough, do not let anyone convince you that “it’s nothing” or “sometimes they just talk later” or “it’s just something cute he/she does” because it’s not their decision, it’s not their child. We heard it all from a lot of people, even our own family doctor… he told us he thought Cameron was fine, going for a diagnosis is a waste of time. You MUST LISTEN TO YOUR INSTINCTS. If you read any of what I said here and think it sounds familiar, get your child looked at. Don’t be afraid of the doctors being wrong, don’t be afraid of what it might mean… just get it done.

About Stuart Duncan

My name is Stuart Duncan, creator of http://www.stuartduncan.name. My oldest son (Cameron) has Autism while my younger son (Tyler) does not. I am a work from home web developer with a background in radio. I do my very best to stay educated and do what ever is necessary to ensure my children have the tools they need to thrive. I share my stories and experiences in an effort to further grow and strengthen the online Autism community and to promote Autism Understanding and Acceptance.

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4 Responses to How Did You Know Your Child Was Autistic?

  1. Charlene November 20, 2010 at 10:22 am #

    Thank you for that post. My son seems to have been the oposite then yours as he was NOT a quiet baby at all. He hated being held but was very content as long as he was not being touched and was fed with a clean diaper. Actually I think he was happiest without the diaper as he really didn’t like the feeling of the diapers. He did not meet any milestones, and couldn’t sit up, roll over or hole his head up until long after they say they should. I heard the same thing, he is just delayed and lately I seem to be struggling with these words. My son has many traits and he is on the spectrum according to the pediatrician but getting a firm diagnosis is proving to be very difficult. I invite you to visit my blog as well as my video diary. If you are interested please let me know. I really am feeling a little discouraged and lost lately. Thanks for the post it is a great write.

  2. Sofie April 12, 2011 at 1:34 pm #

    I’m a 17 year old teenager and both my parents are educators, so I still can’t believe that they didn’t find out I was Autistic until I was in grade seven. I showed a lot of traits that your son, Cameron, shows. I absolutely HATED hugs and kisses. I would just squirm away or scream. I was completely rebellious, but not in a bratty way – in an I Don’t Appreciate Being Told What To Do, Thank You Very Much kind of way. I was agressive on the playground, had absolutely no social skills, I was awful at making friends, I was a complete loner, and I was terrible at making eye-contact. I failed at math, but excelled in reading and writing. I was also an incredibly wise child and preferred the company of adults. I have Aspergers, by the way. Regardless, I am on my way to university. I have no interest in being a normal person, but I want to live my life without my parents taking care of me. By the way, I’m still a complete loner. But I learned social skills and I am great at eye contact now. And obviously, I no longer hit kids on the playground. lol. Cameron sounds like a really bright child!

  3. janette August 3, 2012 at 1:08 pm #

    hi i was told me son have autisum he dont like being touched and flaps his hand when he is happy. he has a speech theropist he dont keep still he dont like change at all and he keeps to his self and he is violent towareds me but not eny one els he puts his fingers in his ears as he dont like loud nose he loves numbers and is a good reader and he has lake of consentration

  4. LindseyJay December 22, 2013 at 3:09 am #

    Thank you for sharing!! This was very relatable and I think will encourage a lot of parents who may be Googling Autism for the first time and for a reason. I knew my som was a bit….”off” I remember calling it, in the first few months of his life. I will never forget the doctors putting him on my chest when he was born and of course I expected him to look at me because his eyes were open but he avoided my face. He continued to do this and did not want to be cuddled as an infant. He was always happy though! At 1 1/2 he was officially diagnosed with PDD NOS. The grieving process for the news is just that even when you already knew deep down. I think it was like that for every mother of his little friends group too. Once I could remember that he was still the same “Bug” we have gotten to know in the passed year and a half, we could let go of the pain we felt for him. Luckily, once therapies start and you are conciously addressing those quirks and socially unacceptable behaviors head on and everyday for a little while, you just become proud of how far they come. The therapies work wonders with rewiring your brain to be one that is a great parent for this kind of mind. It caters to them and pushes them. Bug is our very excitable, sweet and smart 3 year old with a very strong urge to control his enviornment. He also loves chocolate milk and has pretty much declared himself a vegatarian. He makes eye contact now and asks for cuddles. Even if if he is asking for them to munipulate us. Afterall, he is 3. :)

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