Jackson’s Journey – Where no one should ever have to go

Do you know what a Hemispherectomy is? Wikipedia describes it as “a very rare surgical procedure where one cerebral hemisphere (half of the brain) is removed or disabled.”

On Friday, June 29th, at 2pm, a sweet little boy named Jackson is going to be the next person to have a Hemispherectomy.

Taken from Moving Forward… to Neurosurgery:

“J has autism, cerebral palsy, sensory processing disorder and intractable (untreatable) epilepsy.  A form of epilepsy called LKS / ESES.  His brain is in a spike and wave pattern that, among other damages, does not allow REM sleep…the sleep needed to consolidate the days events…allowing learning to happen.  Spike and wave equivocates to his brain firing in attempts of physical manifestations of seizures…. the damage being done is pervasive.”

Jackson’s mom, Gina from http://specialhappens.com is very well known in the special needs blogging community, often giving of herself and providing far more information than most “professional” sites ever have.

And now it’s time to help her out and to help Jackson continue his journey through and beyond his surgery.

They will be hosting a FUNraiser in their town, which you are more than welcome to attend. Information is here: http://jacksonsjourney.specialhappens.com/jumpstarting-jacksons-journey-funraiser

Also, you can help out with a donation, if you can’t attend, by going here: https://rally.org/jacksonsjourney/donate

I know that, being online, especially in the special needs community, we get asked to donate a lot. And we’re forced to pick and choose because as we are in the special needs community ourselves, we don’t have that much to spare as it is.

But I ask you to consider.. what if it was your child. What if you had to bring your child to the hospital, knowing that half of his/her brain was about to be disconnected? How would you feel? How much help would you need?

They’re a strong family. I know that just by reading Gina’s posts and articles. But as strong as they are, they’re going to need a little support as they continue on this journey.

If donating still isn’t something that you can do, then perhaps you could consider cards (bought or made), videos, pictures, flowers, toys or anything that you think might help to brighten up the hospital room which will be home to Jackson for some time following the surgery.

If you have something that you’d like to send, please send it to:

Special Happens / St. Aubin Family
9609 S. University Blvd., #630303
Littleton, CO 80163

 

Please visit the Jackson’s Journey website and read about why this is necessary, how they prepare for it and… what comes next.

Don’t do it for me. Do it for Jackson, because he doesn’t deserve these problems but he does deserve our help.

About Stuart Duncan

My name is Stuart Duncan, creator of http://www.stuartduncan.name. My oldest son (Cameron) has Autism while my younger son (Tyler) does not. I am a work from home web developer with a background in radio. I do my very best to stay educated and do what ever is necessary to ensure my children have the tools they need to thrive. I share my stories and experiences in an effort to further grow and strengthen the online Autism community and to promote Autism Understanding and Acceptance.

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3 Responses to Jackson’s Journey – Where no one should ever have to go

  1. Jenn June 16, 2012 at 9:28 pm #

    Thank you for posting about this. I’ve been a bit amiss from blogging since my husband’s grandmother passed away 2 weeks ago. I will definitely write up a post for tomorrow or Monday and get on the train to help Jackson. I can’t imagine this family’s pain.

  2. Gina June 16, 2012 at 10:31 pm #

    Thank you Stuart for helping to bring Jackson to our community. I would definitely love for him to receive as many cards as possible… to know I can help decorate his room and surround him with love and well wishes from around the world!

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